Thursday, February 28, 2008

Old Faithful


I settled in tonight for one of those luxury baths that only a TRUE bath efficianatto can truly appreciate.
1. Cool bathroom - cold actually.
2. Hot Hot Hot water
3. Nice clean tub
4. Giant gorgeous home made bath bomb.....www.soapbaubles.ca......
5. Brand new novel - spine not even cracked - written by a pseudo friend - how exciting!
In I climb.....
ah - the luxury! the unabashed joy that being totally weightless affords those of us who truly love our baths! AH - pure relaxation.
I float.
I close my eyes and sink my head.
AH.
I shall use my foot to turn off the water....
I am THAT GIRL.
It isn't shutting off.
Up I sit....I will condescend to use my hands THIS TIME to shut it off.
It won't shut off.
I turn and I turn and I try to turn and it just won't shut off!
Oh NO!
Help - I call.
Help - and no one answers.....
Help Wayne Help I scream.....
Up he comes....what is it?
Shut off the tap - the water won't shut off!
He tries and tries - it won't turn off!
WHAT HAVE YOU DONE? - he screams.
Down he runs to the basement - and I sit there - naked in the rapidly over filling tub - because the water won't fucking shut off!!!
I have to let some water out before we over flow.....
Up comes Wayne - wrench in hand.
OOOH he looks so handsome and capable and plumber like!
Every woman loves a hot handyman.
He turns and fiddles and uses a screwdriver.
He hits and pulls.
He uses the wrench and turns.
And then off breaks a piece.
And another.
Do I need to mention that I am still naked in my beautifully scented and now over flowing tub?
The water - still not shutting off.
And bang - he hits it one more time - one LAST time before...........chaos, bedlam, water begins shooting full blast out of the tap hitting the ceiling, bouncing off the walls, the curtains, filling the floor - my books are soaked - my magazine rack totally water-logged!
Wayne runs from the room FULL STOP to the basement to shut off the water at the valve. On the way from the room he slips on the bath mat and, vaudeville style, falls on his ass. Great.
Again, I remind you I am NAKED in the overflowing tub with water shooting all over me.
It seems to take HOURS for him to shut off the water.
But its off.
And the bathroom is a FRIGGING NIGHTMARE!
EVERYTHING is covered in water. And my bath - totally RUINED.
Now what? Now what indeed.
I ran out to Home Depot.
Sure they have replacement parts.
And sure the replacement parts have instructions.
They were even FREE replacement parts.
But that doesn't mean that I can replace them.
Wayne has REFUSED.
So tomorrow I call the plumber.
Until then, not only no more baths - no more water!

Friday, February 22, 2008

Just like a child


When I was about 10 my best friend lived next door. Her name was Lisa.
My family thought that her family was weird. You see, they were Italian. Except in my family it was pronounced EYE-talian. This meant that they ate strange foreign foods like pasta and eggplant and drank wine not beer. They were also catholic. Shock. Horror.
Catholic girl that she was, Lisa went to the school around the corner - Immaculate Conception - or I-macs as it was called and not to Juliet like I did.
Lisa and I played outside every night after school, before dinner and after. We could play out until the street lights would come on at which point our respective mothers would come out on our respective front porches and, as my mother would say, "holler like a fishwife", for us to come in.
There were no other kids our particular age in the neighbourhood. They were either teenagers or little kids. I suspect that this, as much as actual interest or affection, was responsible for our friendship. Sometimes proximity breeds strange bedfellows.
In the case of Lisa and myself, we were stranger than oil and water - chalk and cheese and all those other euphemisms that exist for things that don't naturally go together. But that having been said we were friends for years.
We started out playing with our Barbies together. I must tell you that I played with my Barbie, bad body dismorphic role model that she was, until way too late in my life. Not 16 or anything inappropriate like that, but definitely until I was about 12 or so.
Barbie was my escape. Chubby girl with frizzy hair imagines herself a tall gorgeous super thin busy lovely - and I always imagined my Barbie was super smart and had not only a husband, conveniently named Ken, but also a power job as a doctor or lawyer and a kick ass convert able.
Barbie was never named Barbie though, she was always Leah or Jane or Trisha - something exciting and powerful not like Sandra which I considered quite bland and full of nothing.
I played Barbie alone for years - in my room - in my yard - in the back of the car - and then along came Lisa who liked her Barbie too. Her Barbie, of course was named Lisa.
We would set up our houses, complete with blow up furniture, a respectful distance from one another. I suspect we wanted LAND. I often ended up loaning Lisa my amazing blow up bed with cardboard headboard and matching plastic patterned quilt. You see, she liked it. Who was I to deny her something that was mine? SHE wanted to play with ME!! Tell me that there was anything better than that?
Our Barbie's did good fun things like go to work and make supper for our Ken dolls. Sometimes we would park our convertibles in front of the tv and pretend to go to the drive-in. Lisa and I would sit behind them eating popcorn and watching "Tammy and the Doctor".
All of this was fun but Lisa had a secret. Oh yes she did. Her secret was kept neatly hidden at her school but, as we got older, and technology (okay 1976 technology), the telephone, invaded our life, her secret got out! Lisa - was POPULAR. It seems like a little thing but it morphed our friendship to something HUGE.
Lisa stopped playing outside every single night. Sometimes, she'd be lured away by the intoxicating mysteries of the phone. Now, I can't say for sure what she and her new-found popular school friends talked about but, in my head, I imagine that it was all about how to rule the school, who to shun, who to mock and who to tease. That was the modus operandi for popular people right? To make everyone else feel inferior by their superiority? Right? Right?
It was hard for me to adjust to not being important in Lisa's life. But I sucked it up and kept on playing away with my Barbie. Barbie now got to sleep in her own deluxe blow up bed any time she wanted.
Sometimes, on weekends, I would get invited to be part of Lisa's entourage. You see, the popular girls, Becky, Maria and Julie, they all went to the catholic school and didn't know what kind of social pariah I was at Juliet. I was IN for those few hours on a Saturday afternoon.
But what would we do?
We could listen to the radio? We could sit and talk about boys? We could try on Lisa's mom's clothes and shoes and makeup? We could play Barbies, I suggested...
*chirp*
**crickets**
*Stares with open mouths*
I remember that moment like a hard slap in the face.
Becky looked at Lisa, ignoring me entirely, and said "how OLD is she?"
I WANTED to say "but its what Lisa and I always do" - but, I knew - I just knew if I gave Lisa's Barbie love up that it would be a bad bad bad thing that our friendship would never recover from.
I went home that night, put my Barbies in a box and never touched them again. Many years later my cousin Amy was thrilled with Barbies' still in good condition blow up bed.
Many weeks later after listening to the radio and talking about boys who's names I knew but had never met I was instructed by Lisa that I would have to leave - now. You see, the others were staying over night - a sleepover with pizza and everything. I wasn't invited, explained Becky (I assume Becky explained because Lisa was a bad liar) because Lisa's mother wouldn't allow her to have people who weren't catholic sleep in her house. A perfectly logical explanation really. Why would they want a heathen polluting their sleeping bags?
So, dutifully I thanked Lisa for inviting me over and headed out the door. On the porch I ran into Lisa's Mom.
'Aren't you going to stay over tonight with the girls?" she said.
Instantly I knew that I should cover my undesirability as a guest.
"I'm not allowed" I said. Instantly I was ready with a barrage of back up lies about my mother being old fashioned, needing to go to church, being on medication and having a bad back == just in case they were needed.
But they weren't. She went inside. And I went home and cried.
For right there that moment I realized that while I was part of the group for a couple of hours on a Saturday afternoon, I wasn't really part of anything.
Just as I knew deep down that I was Lisa's friend when we played Barbies but only for my blow up bed and my proximity to her house.
I continued to hang out with Lisa when I could, when she wanted me and when I was allowed, until we hit high school.
Over that period of time I was her confidante when she liked a boy that the others disapproved of. I was her sounding board when she herself was excluded from the group. I was her dance partner when ice dancing was all the rage and she needed someone who could lift her. And on the day that Elvis died I was there with her to help comfort her Mom who was beside herself with grief.
We parted ways in high school, her popularity by thenb far exceeding what I was capable of achieving and creating a gap which neither of us were able to bridge.
My point here is not that I once had a popular friend and therefore should now be popular by association and therefore am way too cool to hang with any of you.
Nor is it to garner pity for my sad social ineptitude as a kid growing up.
I want to illustrate that how we allow ourselves to be treated in friendship as children sets the scene for how we carry forward throughout our lives.
I was a WILLING VICTIM of Lisa's disdain and to a certain extent her ridicule if my memory of feeling her bite is clear these 30 years later.
Life lets you lead yourself places and sometimes it takes you there by itself.
I still do all these things: I loan out my "things" to friends although I want them for myself. Not physical things anymore so much as my thoughts and feelings and time.
I hurt for various reasons and instead of running back up to that bed room and saying to Lisa and the evil Becky - "I know you lied you little bitch your Mom told me!" - and then running the hell out of that house head held high no regrets and never talking to that bitchy little madame again....I retreat and repress and keep all of my feelings in.
Mostly those feelings are ironically related to shame. I feel such SHAME when someone, worthy of my affection or not, does not want me around. My rational mind, my indoor voice knows that this is silly. But when you've done something, felt something forever, its hard to change.
Over the course of my life I have done many things in the name of friendship. I have lied to them, lied for them and lied about them. I have altered my life plans for them, given advice and told them how to live their lives. I have abused them and been abused by them. I have had them choose their boy friends over me. I've had them leave me behind and move on. I've moved on and never left them any place but in my heart. I've moved out in the middle of the night. I've fought with them and argued with them and sucked up to them but I've very rarely told them two things: what I really think and the truth.
I've loved them. I've also not.
And now, at 41, my son is being bullied - and upset by his FRIENDS. Again. The kid doing the bullying is himself bullied by his own older brother. While I feel for this kid I also want to punch him in the neck.
I see my son retreat inside himself to the place of shame that he and I share - shame at being excluded and for finding himself in a a place where he is in a position with no power.
I say to him - "stand up for yourself" and "you are worthy of respect". I say that as a mom quite convincingly I think - yet, I don't believe it of myself.
I see him crumble and I try to hold him up. I see him try to suck back the snot that is really just tears he isn't crying. I want to tell him not to be like me but I know he will.
Such a bad age. Its so hard to be ten years old.

Wednesday, February 20, 2008

February 20, 2008

Please answer this question with the closest appropriate response.

Sandra is currently:
a) homicidal. Sandra wants to hurt, maim, kill or injure people (insert names of people here).
b) suicidal. Sandra feels that all would be better and things would hurt less if it all just went away. Far, far away, irrevocably completely away.
c) disappointed. Sandra is disappointed in not only herself but others, the universe, karma (which she now believes is a complete waste of time), fate (which again, could quite conceivably be a crock of shit) and even happenstance.
d) all of the above....plus a couple other things thrown in for good measure like: anger, betrayal, malnourishment, heartbreak, crestfallen-ness, insanity, moronic behaviouron her part and the parts of others and obesity.
e) none of the above. Sandra simply craves your attention something fierce.

Please select answer, insert explanation or reasons for your opinion and submit as a comment.

Monday, February 18, 2008

Live throught this and you won't look back

I have a friend that plays me music and before the song starts he'll say "this is my theme song". He says that the song touched him at this point in his life or at that point - that it reminds him of this or that and that it totally encapsulates his feeling about this person or his relationship with that one.
I listen to the songs - and I must admit because I find this particular friend completely enchanting - I really listen. I hear the words and I get his point. I understand how this song IS or WAS his life.
I fully expect each time I see him to hear a tiny invisible iPod pumping out these tunes.
He doesn't just have one theme song - like Spongebob or even "Hail to the Chief" - he has many. And he's totally bang on - each one IS about him.
I don't have this.
In my entire life I've had one song that I could say I believed was truly written for me. It was situational though and completely brought me through the great "gonna die" episode of 2007.
Calendar Girl by Stars

I dreamed I was dying as I so often do
and when I awoke I was sure it was true
I ran to the window
threw my head to the sky
and said whoever is up there
please don't let me die
but I can't live forever
I can't always be
one day i'll be sand on a beach by the sea
the pages keep turning
I mark off each day with a cross
and I'll laugh about all that we've lost

I try to think back to when I was a kid - the music that I listened to created, as I've said here before, a soundtrack and a backdrop to my life. What it never did was touch me.
Not until this past year has music actually touched me.
Just this week my friend of the theme songs said that he found the band that I like the best, BORING. He was worried that this would hurt my feelings....hate the band insult the fan....but it really didn't at all. I mean, I have nothing invested in them - right? They are just a band.
But that right there is a problem. Just a band. Just a song. Just a nice thing to sing along with on the radio.
I want music to touch me. I know that music has the ability to change my mood. And I know from this last year that it has the power to save me as I ride the waves of my own moodiness.
I find myself at a crossroads today, blog people.
I'm a little lost.
I'm a little hurt.
I am being too reckless with my own feelings and too thoughtless with those of others.
I wish I had a theme song - something that was me - to pull me out the other side. I'm thinking maybe of this.....

Spiderman, spiderman
does whatever a spider can......

Saturday, February 16, 2008

Friday, February 15, 2008

Its a Jelly Bean World


Spare time.
What is spare about spare time?
I don't seem to have any leftover - sitting on a shelf somewhere like the chili that grew fur in my fridge last week: it was leftover from the leftover leftover's leftovers and over and over and over again. I threw it away.
But time is more immediately wasted.
At the end of the day if I haven't slept enough or spent enough time doing something or too much time doing something else, then its just gone.
Its like every day they give you 8,963 jelly beans and you can eat them all whenever you want for what ever reason. But, at the end of the day, all of the jelly beans must be gone.
The trick is to not eat them all at once so they make you sick.
Don't eat all green ones or you have a heart attack.
All pink ones will make you lonely.
All white ones will make you mean.
And the purple ones? Don't even ask!
But, who decides what the perfect balance of beans is?
Who decides, this guy gets more blue and you get more yellow and NO ORANGE for anyone!???
What if you aren't hungry and day after day after day, you just eat too many brown ones and sleep too much and can't eat all the lime ones?
What if you finish the jelly beans at the middle of the day?
Can you get more?
Nope.
Not even if you steal them or beg them or borrow them.
You can't trade them - they are only for you.
You can tell people which ones you think they should eat - but they don't belong to you so its ultimately THEIR decision.
From the second we're born we have jelly beans.
Some days I've been worried that I've dropped mine all on the floor. Some are dirty and I don't eat them and some are just lost. I live in constant fear of overindulgence and waste. But spare? None of mine are spare.

Tuesday, February 5, 2008

Reaffirmation

About a year ago - pretty close anyway - Rick said I had to tell the doctor about the morphing mass of crap on my leg. It was a freckle that turned colour, got scaley and bumpy. Yes. It needed to go. As a matter of fact, I wrote myself a note that day. It said "remember left leg". And I did - I remembered to tell the doctor - yay me!
At first I said - it's probably just psoriasis - right? But the doctor said - "hm". We better take a sample, he said. Next month - let's see if it grows.
I waited a month - watching and waiting for any infantessimally small growth on this dime sized spot on my leg. Was it bigger? Had it changed? Really though, I couldn't tell.
I dutifully returned in exactly one month to the doctor's office. He measured it all again - and it had almost doubled in size. I guess I really couldn't tell. He took a biopsy and sent it away and I left with a hole in my leg that hurt like a bitch about the size of a pencil.
I waited the 2 weeks and started calling for results. Nothing is back. Wait something is back... I'm going to have to have the doctor call you. That is never good.
It was something called ExtraMammary Paget's disease. I was shunted from the family doctor over to the Dermatology clinic. They apparently (and you'll find out why apparently is the right word later...) know more about this kind of thing.
Extramammary Paget's is a form of skin cancer. A secondary cancer really. It is caused by a base cancer somewhere else in the body and manifests itself somewhere else. It needed to be removed - and soon.
But beyond removing the skin cancer, we needed to find out what other cancer was causing it. Did I have undiagnosed breast cancer, lung, brain, bone, colon, bowel, gyne....where was the evil cancer bastard hiding?
I remember going home - telling my husband and just sobbing for a day. A full 24 hour day. It took me about a week to start to tell people. Its hard to explain to people that you have skin cancer - which lets face it, is really nothing - and beyond that you have another cancer that no one knows what it is and how to find it.
EMP is rare they kept telling me. Only about 200 people a year are diagnosed with it. Of those people about 10% - or 20 people in the world (or as I like to say - in the known universe) have no underlying cancer. My hope was to bank on being one in 20. I defy the odds a lot - surely I could be that rare!
I had the excision in May. They cut out a chunk of my leg that was 4 inches by 3 inches and one inch deep. I left a divot in my upper left thigh and a scar like a catterpiller.
When the dermatologist called me back with the results - he confirmed that indeed it was EMP and the testing should begin for all the underlying possibilities. In June and July I had: a bone scan, a abdominal CT scan, MRI, Gyne Ultrasound, a mammogram, colposcopy (you don't want to know but they put a camera up your lady parts and use a knife - un hm!), a chest xray, a thyroid ultrasound, blood tests and my personal fave, a colonoscopy.
The stress of the tests was overwhelming! Everything - every last one came back negative. There was relief after I received the results of every test. Thankful that it wasn't the "cancer of the day". But dread as well as my possibilities dwindled. All I have left is....... and the vain hope that its just independant.
In July I was told that the underlying cancer must be dormant - meaning not manifesting itself YET. YET being the operative word. For the last six months everytime I've had a headache it had the potential to be brain cancer and every diarreah signaled bowel cancer. I had an overwhelming sense of foreboding that I cannot describe to you.
The entire time that this went on I learned a lot about myself.
I am a consumate faker. I pretended that I was fine 90% of the time when in reality the thought of leaving motherless children filled me with abject terror. I was overwhelmed by anything and everything but my ability to fake that I was fine was astounding, even to me.
I have amazing friends. From my best friends who made me feel more loved than I ever had before to strangers on line who through this time became friends - everyone and I mean everyone - was amazing. The love and support people show someone who is in crisis is just astounding. Its a pity we don't do that for each other all the time.
I can change my own life. I met a boy and this boy helped me to see that the power of my own free will over the things that I think and the things that I say and what I eat and what I do and who I have in my life - that power is all mine. And I exercised that power in a bunch of places. I changed my attitude, I changed my direction and I believe I changed my own life.
That being said, I returned to the hospital last week to follow up with the Dermatological Oncologist - skin cancer doctor to you and me. This "expert" on EMP had been out of the country until just this month.
She took one look at me and said - who told you this was Paget's disease?
The doctors.
When? Why? Who? Based on what?
I explained the long involved gruelling tests I went through. I told her about the biopsy and the excision and how BOTH had come back from the pathologist saying EMP. I told her of the doctors and technicians I had seen. All the year of searching.
And her response? I think they are wrong.
She pulled up the pathology - checked it herself again - and sure enough they were wrong. Apparently, EMP and another cancer, a squamous cell carcinoma called Bowen's disease are exactly the same except for 2 things. And the other pathologist just made a mistake.
A mistake.
They just made a mistake.
For one full year of my life I went through the absolute hell of thinking that I had a disease that had the potential to kill me. I believed that somewhere inside me lurked an illness that had killed my father in 6 months and now, for some unknown reason was coming after me.
But they made a mistake.
How is the Bowen's treated? - I managed to stammer out....through removal of the lesion. And since the margins were clear on my excision, it was removed - totally and completely.
The cancer is gone.
I am done with it.
I don't have an underlying cancer.
There is no primary source.
Its all gone.
All of this information in a 2 minute conversation. I had spent a year thinking I was dying and now I am totally fine in a manner of minutes.
So yes. I am eternally grateful for the incompetance of other people. Hurray for the doctor making mistakes.
Hurray for EVERYONE being wrong.
Someone suggested to me that it was the power of positive thinking that CHANGED that diagnosis. A bit of good karma induced revisionist history. Do I believe that is possible? Hell yes.
Do I think that the changes I made in my head and my life have made SUCH a difference that the gods decided that I deserved a second chance? I hope so.
I am grateful every day to be here. To do what I do and love the people I love and know the things I know.
Why has it taken me a week to say anything?
Because its hard to adjust.
One person suggested to me that I got off on the whole "I'm sick - I'm dying" vibe. And I have to tell you - that is totally not it at all. There is nothing glamourous about being someone that people pity. There is really no WORSE feeling, to tell you the truth.
I feel like I spent a whole year CHURNING through every emotional rollercoaster. I put on that brave face - and now I have to take it off. That's a big adjustment.
But I'm ready now.
I no longer have cancer.
Its gone - cut out. I am in the middle of my life. I've changed my attitude, my diet and my outlook. I thank you all for being so amazingly wonderfully supportive.
I promise not to eat steak - eventhough I changed BECAUSE of the cancer. I promise not to take things like my health for granted - eventhough that is SO easy to do. I promise to use sunscreen. I promise to keep telling those that I love and value how very much they mean to me.